Lately, I’ve been coming across some blog posts that try to describe a rheumatoid arthritis flare. It is a great notion – but is it even possible to do? I’ve tried taking photos of bad flares, and, in that case, pictures are NOT worth a thousand words, because there’s just no way to “show” that … Continue reading »
Tagged with advocacy …
Arthritis and Chronic Illness: Stripping Away Labels and Stigma – by Ashley Boynes-Shuck
When I was in graduate school, I took one psychology course that was oriented towards special education. One important thing that I took away from it was that we should always use, “people-first” language. At the time, I only thought of it in the realm of dealing with children with special needs, but, now, I … Continue reading »
Health & Hollywood: Stars Get Sick, Too! A Look at Celebrities with Chronic Illness – by Ashley Boynes-Shuck
Sure, their “people” usually try to either: a.) hide the fact that their celebrity client is sick or b.) exploit the fact that their celebrity client is sick….but the truth is, stars are human, and even the most beautiful, rich, and famous people in the world get sick, too. I was saddened to hear about … Continue reading »
The Time to Advocate is Now! Arthritis Advocacy and Our Health – by Ashley Boynes-Shuck
I’ve shared ways to advocate in the past, but there’s no time like the present to get involved if you haven’t already. You may or not be aware of this but Congress has appointed a “Super Committee” to find ways to reduce government spending. This is an important task, yet we as patients and advocates … Continue reading »
World Arthritis Day 2011 – Do Blue & Move to Improve! (…And some words from Oprah Winfrey & Dr. Phil, too!) – by Ashley Boynes-Shuck
Today, October 12th, 2011, is World Arthritis Day. This year’s theme is “Move to Improve” — and that’s exactly what we want YOU to do! We would like you to move around the world for arthritis awareness. By October 31st, the Arthritis Foundation by choosing your weapon against arthritis pain. The goal is covering the distance … Continue reading »
Billie Jean King and Venus Williams: Two Tennis Stars Making Arthritis News! – by Ashley Boynes-Shuck
In the past 24 hours, two tennis stars have made “rheum” for some big announcements. First, tennis legend Billie Jean King was announced as the star of the new Arthritis Foundation campaign to help fight arthritis pain. The new ads state that we “need a weapon in fighting arthritis” and asks fellow arthritis sufferers — … Continue reading »
The 411 on Side Effects – by Ashley Boynes-Shuck
This afternoon, I went to an event for psoriasis and psoriatic arthritis. It was inspiring to be able to talk to other people – many of them young people – who are living with chronic autoimmune conditions, and doing it as best they can. However, a common thread that I notice in talking with people … Continue reading »
Joys and Pains: A Rheumatoid Arthritis Poem – by Ashley Boynes-Shuck
For today’s blog post, I would like to do something a little different, and share with you all a poem that I wrote about life with rheumatoid arthritis and other rheumatic conditions/chronic illnesses. It is called Joys and Pains. Please enjoy! “Unrelenting pain and never-ceasing fatigue. Hurts and aches in every place. Wondering at times, … Continue reading »
Speak Up for Arthritis! Don’t Let Congress Cut Funding! by Ashley Boynes-Shuck
Your time to “do something” is now. Please, speak up for arthritis and all who live with it on a daily basis. If we don’t act, Congress WILL cut arthritis research. No ifs, ands, or buts about it. Congress plans to cut $1.2 trillion in federal spending by November 2011. If we do not tell … Continue reading »
The Great Debate: Alcohol and Arthritis by Ashley Boynes-Shuck
Like all great debates, there are opinions — and evidence — on both sides of the “alcohol and arthritis” issue. Some studies show that moderate alcohol intake is actually good for arthritis/inflammation….but many people with the conditions say that drinking worsens their symptoms. Of course, there are also the medications — many of which state … Continue reading »
