Comments for Wellness With a Side of Life, Please

Comment on 13 Arthritis Tips and Resolutions for the New Year – by Ashley Boynes-Shuck by taoofbadassreview.co

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Comment on 13 Arthritis Tips and Resolutions for the New Year – by Ashley Boynes-Shuck by Christie

Christie — Wed, 15 May 2013 02:30:00 +0000

Excellent. I agree.

Comment on Back Pain and Spine Health Solutions – by Ashley Boynes-Shuck by Travis

Travis — Fri, 10 May 2013 19:02:17 +0000

Ashley thank you for sharing this. It really helps people like myself with severe back pain. Some of these tips I had no idea about!

Travis.

Comment on Palindromic Rheumatism – What Is It? by Ashley Boynes-Shuck by Fi

Fi — Wed, 08 May 2013 18:20:32 +0000

Yes I have been to A&E twice (emergency room) once in an ambulance. Both times was my PRA in my ribs and chest that mimic heart issues. They gave me the blood gas test 6 hours after the severe pain and both times came back normal x you need to be careful though because the danger is that u put everything down to your condition x

Comment on Contact Us by Julie

Julie — Wed, 08 May 2013 16:33:47 +0000

I don’t understand your website anymore… I wanted to look in on the PRA part, but I don’t see how to get around except to click on one of the blog entries showing… I found it once several years ago, but now… you’ve lost me….help?!

Comment on Palindromic Rheumatism – What Is It? by Ashley Boynes-Shuck by Lori Cropp (@Textileaholic)

Lori Cropp (@Textileaholic) — Wed, 08 May 2013 13:11:30 +0000

I have also ha the chest issues. It feels like my sternum is bruised or sometimes it’s a achiness between my should blades. The usual spots are hands, knees, feet and occasionally one shoulder. Diagnosed with PR finally in January and have been on Plaquinel which is doing very nicely for me, even if I miss a dose. My labs hae been exactly like yours for 10 years. I also have experienced the weight issue (46 years old). I figured it was partially because of lowered activity level because I couldn’t walk comfortably half the time.

Comment on Palindromic Rheumatism – What Is It? by Ashley Boynes-Shuck by Cindy Benson.

Cindy Benson. — Wed, 08 May 2013 04:35:14 +0000

Like so many here, I have been searching for a diagnosis to explain these inflammatory attacks. Two years ago saw a Rheumatologist and he dx’d me with RA, Wanted to start me on meds but I would have to have liver functioning monitoring and eye exams. I was only having occasional flares at the time and decided to try to control them with diet. Bacon, Brisket, Sausage, etc, will set off a flare immediately. Didn’t work. I avoid those and I still have random attacks. They have started to increase in frequency. Mostly in forearm (I have nodules), knees, feet, hands and fingers. I have always had random short painful episodes in my neck and shoulders but attributed them to “just sleeping wrong”. I am active and otherwise very healthy. All labs and test return normal. Slight elevation in R Factor. I have also noticed in the past year “fluid retention” issues and inability to lose weight. (I blamed this on growing older. I’m 45).
During an attack, i have found nothing alleviates the pain. It does feel like you have broken a bone. Four years ago I wrecked on a dirt bike and broke my clavicle in 3 places. The pain that peaks during a flare is worse!!!!
Last week I began having severe chest pains. The pattern fit one of my typical “flares”. My BP was normal so I just waited it out. After it peaked, it was only painful when I took a deep breath. (I had a similar episode back in Aug. of chest pain when I breathed deeply. Lasted only a few hours, EKG normal, pain was mild).
So again, I went to the Dr. the next day. EKG, Cardiac labs, and stress test…….all normal. Not heart, muscular-skeletal!! Has anyone else had the chest pain with PR.

I think it’s time to go back and visit the Rheumatologist. Maybe start those meds. So relieved to finally have a name to go along with this transient craziness.

Comment on Palindromic Rheumatism – What Is It? by Ashley Boynes-Shuck by Marian Eichlin

Marian Eichlin — Mon, 06 May 2013 02:43:59 +0000

Has anyone tried a far infrared suana? They sound good. I’m thinking of purchasing one later this year to see if they help with my flares,

Comment on Palindromic Rheumatism – What Is It? by Ashley Boynes-Shuck by virginia

virginia — Thu, 02 May 2013 05:11:00 +0000

Interesting KB……I too had plantar fascitiis in my left foot before I was diagnosed with PR. I come from a backround in landscaping and gardening….lots of physical hard work. Who’s to say what caused it but it’s neat to have similiarities. Who knows if we all keep sharing common things we may unit and find a damn cure )

Comment on Palindromic Rheumatism – What Is It? by Ashley Boynes-Shuck by virginia

virginia — Thu, 02 May 2013 05:00:45 +0000

I will never forget the day that after my Rheumatologist gave me a prescription to start to manage my condition, I returned to him not haven taken them and said I was trying to fight it as natural as possible…..he basically said hows that working out for you……not good not good at all. With all my wishes of trying to figure out a way I just couldn’t take it anymore. The amounts of flares weekly were outrageous, the pain was astronomical, the dabilitating life it was giving me simply was just not worth it. I now take meds for my under active thyroid condition (thanks PR) and take Methotrexate for my palindromic. Just saying that sometimes you just have to let our medical society win and help us with treatment …..good luck