Hello, friends! I hope that today finds you all doing well and feeling okay lately!
My trip to South Carolina was lovely and relaxing. I enjoyed some nice beach time, loved the sunshine, and got some quality time with my parents and boyfriend. The sun and warm weather made me feel a lot better, my joints weren’t achy, and I only battled a few really bad headaches. (One, on a Methotrexate day. However, I’d rather be struggling with Methotrexate side effects laying on a beach versus laying on my couch. Beach trumps couch, always!)
Myrtle Beach’s “Broadway at the Beach” has a restaurant called Margaritaville which offered an extensive gluten-free menu. Having Celiac Disease, the prospect of enjoying a gluten-free hamburger on an actual BUN with actual FRENCH FRIES with a BEER at a “real” restaurant like a “normal” person excited me greatly. So, despite grumblings from the rest of my crew, it was so worth the 3-hour wait….and I got my photo taken with an exotic parrot on my arm to boot – pretty cool, if I do say so myself.
On vacation, I also decided, too, that I’m trying this new thing, too, where I try to be logical about my shoe choice. If any of you have read my past blogs where I have been ignoring my doctors for years now about the idiocy of my wearing stilettos and pumps given my knee and back situation, then you know that I have somewhat of an unhealthy shoe obsession. (Hey, what can I say? I love high heels, and fashion, and dangerously cute shoes – and I do mean dangerous in a literal sense here!) So, while on vacation, I explored the world of unique – yet cute – flats. I figure that during the summer, I can find flattering and cute sandals. My problem will come, however, when summer is over and I have to wear flats that are NOT so “open” and forgiving. That is when I may have to revert back to my heel-wearing habit. I’ve had friends on my Arthritis Ashley Facebook page, and my family members, and my boyfriend, trying to talk some sense into me. However, this is one instance in my life where logic isn’t winning.
NO. I do NOT want to end up in a wheelchair because of a shoe fetish that would rival Carrie Bradshaw’s. YES. I know that I am causing myself more pain than necessary. But, come on – I’m not rocking some Lady Gaga platforms here. The shoes I’m wearing aren’t outrageous. They’re just cute shoes that any of my ‘healthy’ (well-dressed) friends would be wearing.
The way that my mind is working, though? I am in sick/pain anyway if I’m wearing flats, slippers, no shoes, or six-inch heels. I assume that I’d be in some form of pain if I’d be wearing stilts. Sometimes, I’m in pain when I’m sleeping. Sometimes, I’m in pain even if I take pain medication. So, it may be a sour attitude to have, but, when sacrificing so much already, why should I sacrifice my shoes?
How much of a difference is it going to make?
Where do we, as patients with arthritis and/or other chronic illnesses, draw the line?
I mean, I understand that we have to be proactive patients who are on top of our health at all times. Naturally, we don’t want to do anything that’s going to be TOO detrimental to our health. We want to improve our quality of life, we want to increase our life span, we want to make sure that we are comfortable and taken care of, and taking our medications properly, going to all of our treatments and doctor appointments, and being responsible and accountable for our own health because we want to get better. I do all of these things.
With this exception.
Life is short. We have to be happy, too. Life is about moderation, also. You have to weigh importance of things and sometimes, make sacrifices in order for your own happiness.
For example: I am beyond strict with my gluten-free diet….to the point of it being almost OCD. I know that, by ingesting even trace amounts of gluten, that my risk for many cancers increases, as does the risk for infertility and neurological disease. So, you will NEVER see me cheat on my gluten-free diet. (In addition to the diet – there better not be even a sprinkle of gluten in my medications, beauty products, toothpaste, shampoo, lipstick, vitamins, on my counter, etc!)
However, I have some other “food allergies” that are not, by any means, deadly, or all that severe. Garlic is one of the many. So, if I want to order a gluten-free pizza, then, yes, it better be gluten-free, but, if there is garlic in the sauce, I’m not going to deprive myself of that pizza, because there may be a touch of garlic in the sauce, or garlic seasoning, etc.
Mind you, if the garlic was going to send me into anaphylactic shock or give me any serious or long-term reaction, well, that would be a different story. You have to know your limits, know your boundaries, know the consequences of your decisions, and know your own body and what makes you tick.
Additionally, I don’t like to take pain medications. Some people think that this is insane. “What? You have RA and you don’t see a pain doctor? You don’t take pain meds like percoset or vicodin?”
No, I don’t. I don’t because I see people get hooked on them. I don’t because I see people get drugged up and go through the day in a fog, seeming like a zombie. I personally don’t like any medications that worsens my “brain fog” or puts me in a haze. That’s just my OWN personal choice, and every drug affects every person differently, so I don’t “hate on” anyone that takes it. I say to each their own – that’s just me. So, yes, at times I am suffering in extreme pain and it is a sacrifice not to take the pain medication. I realize that, and you may think that it is a dumb choice – just as it may be a dumb choice to eat garlic when I’m allergic to it, or wear high heels when it worsens my already-bad knees and back.
But – isn’t life all about making choices and, sometimes, making certain sacrifices to make yourself happy?
The way that I look at it, is that I’ve already given up a lot because of these conditions. I’ve given up sports, friendships, a career in teaching, working full-time in general, the body that I would like to have, the lifestyle that I would like to have, and many, many, many foods due to a lot of dietary restrictions due to food allergies and intolerances, the Celiac disease, and now, GERD.
When I was on vacation, I decided this: I’m not going to give up wearing heels 100% – but I AM going to try to becomeaccustomed to wearing flats more frequently and to make my mark by finding really unique ones. (see right) I’ll wear the heels in moderation.
While I was down there, I also decided that I’m going to try to continue to just live life to the fullest and stop dwelling on the “what could have been”. At one point, I got “down” because I saw how “fit” and “athletic” / “in-shape” looking that “other” people in their 20′s were. Obviously, I wasn’t one of them, and I was wishing that was me, and thinking that it would have been IF I hadn’t had these conditions. Sure, that was most likely the truth. Sure, I’m small and petite. However, having chronic illness, gaining weight and being bloated from medications, and then, on top of that, barely being to work out ever if at all, does NOTHING for your (once cute) body. I can still wear a bikini. But, I’m not in shape at all (not by any means – but at least I know how to fake it for photos – LOL!) and I was wearing a cover-up a lot and sitting under the umbrealla.
I naturally wish that I COULD jog, bike, or rollerblade. Sometimes even swimming is hard now with my shoulders! Yoga is usually fine for my RA…..but, not so much when I have a horrible migraine or stomach pains/nausea! So, I got mopey for about 20 minutes. Then, I looked around, and realized….I’m at the BEACH! Who cares what I look like? Aside from that, I opened up the magazine I was reading…and it showed untouched “real” celebrity beach bodies. Hallelujah! The beach gods smiled upon me that day. (What was THEIR excuse for not working out?)
The point is, I began to realize I had no reason to feel self-conscious. I will, hopefully, some day, be able to get back into the gym, or some type of more consistent exercise routine. After all – exercise is THE BEST medicine for arthritis!
So, the next day, I decided that even though I have arthritis, widely and MISTAKENLY considered an “old-person’s” disease, I’m not going to cover up like an old lady at the beach! Nor am I going to mope around. I rocked a bellybutton ring that day like it was the year 2000, and wore a cute bikini for the world to see! I won’t let arthritis bring me down, and I won’t let my illnesses defiine me! If you think young, you’ll feel young! :)
Now….in other news … I met with a counselor who diagnosed me with anxiety. He thinks that it is ‘reactive anxiety’ in direct relation to my chronic illnesses. Do any of you have anxiety in relation to your arthritis or other conditions? He also wants me to try Biofeedback for pain management. Have any of you tried biofeedback, and what do you think? If you have, please leave a comment, and share your story!
FYI … “Biofeedback is the process of becoming aware of various physiological functions using instruments that provide information on the activity of those same systems, with a goal of being able to manipulate them at will. Processes that can be controlled include brainwaves, muscle tone, skin conductance, heart rate and pain perception. Biofeedback may be used to improve health.”
Here’s another discussion starter: Recently, a favorite blogger of mine – Kelly Young of RA Warrior wrote about things shewould do if she didn’t have Rheumatoid Arthritis. What are some things you would do? I would most definitely play on an under-3o softball team. I would take up running or jogging….maybe I would also really like to start biking and/or rollerblading. I would get a personal trainer and go to the gym more frequently! I would be able to clean my house more often! I also want to say that these are things that I still do intend to do someday when – not if but WHEN – I get better
In the meantime, I’d like to continue walking and swimming, and start yoga classes back up again! Over vacation, I did a lot of walking, some swimming, and played some Par-3 golf with my boyfriend and mini-golf with him and my parents. What types of exercises have you done lately? My favorite is just taking walks with my dog or my boyfriend!
Well .. I must go. Time to pack for a long weekend in Florida!
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